Hello folks! I'm alive!
Kinda embarrassed for not blogging for sooo long, but according to the COVID -19 pandemic, i decided i need to have something productive to do, since I can't really go to school, so i decided to start this little project of mine again. I posted a status on my personal facebook page, asking people if they wanted to ask me anything that i could cover here in the next few weeks. Today, I'll cover the first question, brought to me by Hlédís, a devoted CVI mom here in Iceland.
So, what would I say to a child with CVI?
First of all, you're not alone. I thought I was. It was wrong. When you were born - or later in your life, something happened. There are many reasons for why we get CVI so not neccessarily the same thing happened to you as me. Something happened that made your brain different than your friends brains. Your mom or dad can tell you what happened if you don't already know. One of the concequences from that is your CVI . This means that you see the world differently than others. It does NOT mean you don't see the world at all, but you see less. I wasn't diagnosed until i was 24 years of age, but its important you get diagnosed as soon as possible if anyone suspects you have CVI. So, maybe you trip and fall very often. Maybe you get scared in sports cause you don't see the ball. You could have trouble studying math or reading. CVI is never exactcly the same in anyone. You probably find it difficult to know where you are going, even in familiar places sometimes. You might get tired very easily, looking at things, or having to focus for a long time. For example i can't focus for much more than half an hour at a time. I'm a singer but i still can't read sheet music, because of CVI. It's the hardest thing ever, but I'm not gonna let it stop me, whatever people say. You're going to experience difficulty, not only with your visual experiences but also with other people, who will maybe not believe you. Just remember you are the one telling the truth, not them!
You might hear the doctor say that you are ,,legally blind". That happened to me. That does not mean that you are completely blind. It means you are visually impaired and that you qualify for services because of that. For example you might want to try a cane, a magnifier, braille or try to use your phone more. Tell your parents if you are worried about anything. Most of all, remember that you have a superpower . It's hard, but if you didn't have it, you wouldn't be you!
So, that's that for today you guys. Thank you for reading my blog, please don't stop sending me questions <3
Over and out!
Dagbjört
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